Hey everyone, it’s your GM Lily here. 2022 has been a tough year for me. I’ve had to take a break from social media for UMTV and focus on my health. So, that’s pretty much what this is about.
So, we found out that I have Spina Bifida Occulta. Essentially I have gaps in my spine, but my spinal cord, for the most part, is intact and not pushing out of my spine. We’ve been working on getting my pain under control. I know I have mentioned several times before about my back hurting and now we finally know why! We are currently checking to see if I have Spina Bifida in my neck as well…which brings me up to the next thing.
At the beginning of June, I was rushed to the ER with pain and symptoms mimicking a heart attack and a stroke. I was having a headache and was very disorientated most of the time I was there. I don’t remember a lot of what happened but it lead to me getting an MRI of my brain. First, I have one 😀 So we can mark that as a big ol’ yes! It was discovered that I had extra spinal fluid in my skull and it had started to apply pressure on my brain mimicking a tumor. On top of this, one of my optic nerves was swollen. At this point I was told we need to try to get this fixed before I go blind.
So right now, that’s where we are. Today, I had another MRI to check my neck and brain stem to see if I have Spina Bifida and from there we are looking into a lumbar puncture (spinal tap) to see how bad the fluid in my brain is and if I need to go on medication.
I am very sorry I’ve gone dark on you guys. It was never my intention to disappear. Since we have answers and some treatment, I feel like I am able to be around more and stream and what not. But this is where the good news starts!
I do plan on streaming once more during the day. I will try to keep to my schedule I have but I do have to do a couple of updates on it as I am going to do this around my work schedule! I’m also going to be posting a lot more on FB, Discord, Instagram and Tiktok!
I love you guys so much and I hope all is forgiven! Much loves!!!